MedCapsules Forum
Ehlers Danloss Syndrome - Printable Version

+- MedCapsules Forum (http://medcapsules.com/forum)
+-- Forum: Main Lobby (/forumdisplay.php?fid=1)
+--- Forum: Ask James (/forumdisplay.php?fid=287)
+--- Thread: Ehlers Danloss Syndrome (/showthread.php?tid=5449)



Ehlers Danloss Syndrome - Scandinavian - 01-01-2014 04:20 PM

Hi there James
My girlfriend has the disease called Ehlers-Danlos syndrome which is a group of disorders that affect connective tissues, the skin, bones, blood vessels, and other organs. She is the hypermobility type, and her joints are very unstable and loose with prone to dislocation.
So basically she´s like in pain year round
She also suffers from these symptoms
Often feeling cold, Always cold hands and feets, get blue bruises on the body very easily, get constipated, moodswings, inability to lose weight, Always gaining weight, very often complain about pain in her hips and and down her legs, and at her lower back. Memory problems or having trouble thinking clearly.
I admit, that’s a lot. But she is a strong 40 year old girl who does not complain a lot.
But I really would like to help her regarding that pain she has, I have tried almost any natural remedy on the market (I hate pharmaceuticals ) but with no luck. I can see the others symptoms she has, seems to me like low thyroid or something?? We have tried doctors but they have given up on her years ago.
Hope you can point me In some kind of direction of a solution.


RE: Ehlers Danloss Syndrome - Anderson - 03-09-2014 09:15 AM

(01-01-2014 04:20 PM)Scandinavian Wrote:  Hi there James
My girlfriend has the disease called Ehlers-Danlos syndrome which is a group of disorders that affect connective tissues, the skin, bones, blood vessels, and other organs. She is the hypermobility type, and her joints are very unstable and loose with prone to dislocation.
So basically she´s like in pain year round
She also suffers from these symptoms
Often feeling cold, Always cold hands and feets, get blue bruises on the body very easily, get constipated, moodswings, inability to lose weight, Always gaining weight, very often complain about pain in her hips and and down her legs, and at her lower back. Memory problems or having trouble thinking clearly.
I admit, that’s a lot. But she is a strong 40 year old girl who does not complain a lot.
But I really would like to help her regarding that pain she has, I have tried almost any natural remedy on the market (I hate pharmaceuticals ) but with no luck. I can see the others symptoms she has, seems to me like low thyroid or something?? We have tried doctors but they have given up on her years ago.
Hope you can point me In some kind of direction of a solution.

I remeber James wrote about connective tissues and it has to do with lack of vitamin C and silica, which can be obtained from food-grade diatomaceous earth (DE).

Some topics you may want to read:
http://medcapsules.com/forum/showthread.php?tid=4959&highlight=connective

http://medcapsules.com/forum/showthread.php?tid=4779&highlight=connective

http://medcapsules.com/forum/showthread.php?tid=5162&highlight=connective

And some other:
http://medcapsules.com/forum/search.php?action=results&sid=3f8cc39573b2bff24a27a6d91c8cb873&sortby=lastpost&order=desc

Getting bruises very easily is pretty much weak blood vessels. Again silica and vitamin C.

Feeling cold can be hypothyroidism.

Constipation can have different causes but you can find a lot of information about it this forum or on the old curezone forum:
http://curezone.org/forums/f.asp?f=980


RE: Ehlers Danloss Syndrome - Scandinavian - 03-09-2014 02:34 PM

thanks mate, for looking into it..

i just bought some nettle for her, to get the silica, and maybe i should look into the vitamin c stuff as well..


RE: Ehlers Danloss Syndrome - Anderson - 03-10-2014 04:59 AM

(03-09-2014 02:34 PM)Scandinavian Wrote:  thanks mate, for looking into it..

i just bought some nettle for her, to get the silica, and maybe i should look into the vitamin c stuff as well..

Diatomaceus earth seems to be the best for silica because it bypasses problems with low stomach acid that many people have:

http://medcapsules.com/forum/showthread.php?tid=2800